Tuesday, April 10, 2012

The Wackiness advances

6.5 weeks into my incivek, with 5.5 weeks to go....unless either my platelets drop below 30, significantly increasing the risk of a stroke, or the rashes cover over 50% of my body. The night before last, I had 1 patch. Now I have at least 5; at least they are not too irritating...yet. My GE, ever an optimist, says that they are likely to grow and there is a non-negligible chance of getting one in my anus, which will certainly make it slightly less fun.

Otherwise, my anemia is certainly within acceptable (and even encouraging, since it indicates that the treatment is functioning as intended!) limits even though I can only walk for 2-3 blocks before stopping to catch a breath--and slowly, at that! And the aches and pains are growing, and cycling about, ranging from mild nausea right after medication to a thorough funk right *before* medication to everything in between.

Also, cogninitve effects: it is becoming more and more difficult to concentrate and process information. For the first time in my life, I am having problems reading: the effort puts me to sleep, as likely as not. Sensitivity to light has increased, together with some rather nifty visuals which deserve a post of their own.

But enough pissing and moaning! The good news are that the viral load remains undetectable and that I only have to keep taking incivek, which is the primary culprit, for 39 days only. The other meds will continue for at least 12 more weeks after that, and they have their own set of side-effects, but incivek is apparently the nastiest--and the most likely to work. So I guess my chances of survival for the next 5.5 weeks are relatively high...:D

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